Malignant Hyperthermia Association of the United States
Info
MHAUS is the only association in the United States dedicated to the control of malignant hyperthermia (MH), a life-threatening genetic disorder. Personal tragedy and unsettling experiences with MH lead four individuals, Suellen Long Gallamore, Owen Davison, Robert Luckritz and George Massik, with the help of Dr. Henry Rosenberg, a researcher in malignant hyperthermia, to establish in 1981 the Malignant Hyperthermia Association of the United States to educate the medical and lay communities about MH and serve as a resource to families affected. The membership of the association numbers in the thousands today and includes medical professionals from many disciplines as well as MHS individuals and their families, many of whom have had firsthand experience with the devastating impact of an MH episode. Members contribute $50 or more annually. A Board of Directors governs MHAUS. Most Board members have a personal connection with an individual who is susceptible to MH or have a strong interest in the problem. All volunteer their time and expertise. The Board sets association policy and directs staff operations. A Professional Advisory Council (PAC) advises the Board on formulation of all MHAUS medical policies and decisions, and the PAC members regularly respond to MH inquiries from patients and medical professionals. In 1995, the North American MH Registry merged with MHAUS. The Registry was established in 1987 by Dr. Marilyn Larach along with several MH biopsy center directors. The Registry collects and details information concerning clinical episodes and the results of laboratory tests concerning MH in order to learn about the manifestations of the disorder. The Registry Board advises the MHAUS Board on issues relating to research into the epidemiology, diagnosis and treatment of MH.
Map
PO Box 1069, 13460 Sherburne