Info

The FSH Society is a 501(c)(3) nonprofit, tax-exempt U.S. corporation established in 1991 by Daniel P. Perez. The Society solely addresses specific issues and needs regarding facioscapulohumeral muscular dystrophy (FSHD). It actively promotes research toward the prevention, cause and treatment of FSHD. It also helps facilitate support groups where individuals with like concerns have an opportunity to interact and receive helpful information concerning day-to-day life with FSHD. The Society publishes a newsletter with information about advances in research, political action effecting FSHD research and profiles of people living successful lives. The newsletter is one of several benefits of membership in the Society. Other services provided by the Society include additional written information about IFSHD; genetic and prenatal testing; physical, occupational, speech and hearing therapy; and dietary concerns. The Society also offers assistance and materials to physicians and other professionals interested in FSHD. Anyone with questions about FSHD should contact his or her physician(s), the FSH Society or their local muscular dystrophy association office. The FSH Society depends on your contributions to continue its work in funding research, advocating for research money and educating physicians and the public about FSHD. Please consider helping the FSH Society further with employer matching funds, by including the Society as a beneficiary in estate planning, and by contributing through the United Way and the Combined Federal Campaign (CFC #10239). Please help accelerate research solutions by sending donations payable to the "FSH Society, Inc." to Carol A. Perez, FSH Society, Inc., 3 Westwood Road, Lexington, MA 02420. All contributions, memberships and donations will be acknowledged for tax purposes. For more information on FSHD or how to join the FSH Society please contact:FSH Society, Inc.Daniel Paul Perez