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The KDA Becomes a Member of NORD - The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Click Here to see the NORD web site. 09/09/05- The KDA Announces the New Message Forums We are please to announce that the KDA has set up yet another way to bring fellow KD individuals together and communicate and share information with ease Click Here to go to the page with the forums link. 09/09/05- KDA Annual Report The Kennedy's Disease 2004 Annual Report is available for viewing. Please Click Here to go to the page with the report. 08/23/05- New KDA Board Positions The Kennedy's Disease Association Board of Directors announce the following changes effective August 20, 2005. Susanne Waite has stepped down from the positions of Executive Director and President. Because of her long-standing involvement and dedication to the KDA, Susanne was named 'President Emerita' and given an honorary position for life on the board.